ABC’s new show “The Good Doctor” did something amazing this week. They did a show that featured Langerhans Cell Histiocytosis. The fact that anyone outside of a hospital knows the name of this rare cancer that nearly killed my baby is amazing. I am thrilled the name got out there. But rather than bringing awareness… Continue reading “The Good Doctor” and the Bad Script
I’ve never been a fan of scary movies. I don’t know why, I just don’t do them. Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer
A letter for my little man, who I love more than the stars. Something for him to read through when facing a questionable moment. Archer, my Man!, I love you. I’m not perfect at showing you that I love you all the time. I yell and get angry and I know that makes you wonder. … Continue reading Letter to My Little Man
My sweet Girls, I love you. I’m not perfect at showing you that I love you all the time and I know sometimes you wonder. I yell when you don’t listen to me. I get frustrated, I get angry. I get tired. I’m an imperfect being. But I love you so much it hurts. And… Continue reading Letter to my Daughters
Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer. Eight years ago today, we were told that Sophie’s cancer was gone. Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End
It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon. And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal. I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer
For those who don’t know, something like 20-30% of parents with children that suffer from chronic illnesses or severe diseases suffer with PTSD. PTSD can surface in many different ways, including unexplained frustration, anger, sadness, anxiety, deep depression, issues with going into public, problems with noise, weight gain or loss, and flashbacks. And… Continue reading Flashbacks are a THING.