Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · Motherhood · Parenting · Uncategorized

Little Hands and Living in the Now

Last night, I held our youngest daughter against my chest  and placed a flannel blanket that her Grammy made for her against her cheek and rubbed, holding the blanket wrapped around her tiny body. She instantly grabbed it with one arm and snuggled her face against it, against my chest, and promptly fell asleep. I… Continue reading Little Hands and Living in the Now

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · Husband · liver disease · Love · marriage · Motherhood · Parenting · pediatric cancer · Uncategorized

Homage to Chemo Dads

My husband is a man of many colors, a renaissance man with many cloaks and many talents.  He is humble and kind and doesn’t think much of himself, which is ridiculous, but I can hardly change him or how he sees himself after 14 years.  Much like myself, his soul was marred by our daughter’s… Continue reading Homage to Chemo Dads

Cancer · Chemo mom · Childhood Cancer · Histiocytosis · Motherhood · Parenting · pediatric cancer · Uncategorized

Dear Normal Parents, A Letter From a Chemo Mom

I am the mother of a medically fragile child.   I have been her mother for 8 years, and for nearly all of those 8 years she has been very sick, recovering, or dealing with the permanent effects of her illness.  She was born with Resistant Multisystem Langerhans Cell Histiocytosis, which is a fancy way for… Continue reading Dear Normal Parents, A Letter From a Chemo Mom