Chemo mom · Childhood Cancer · children · Histiocytosis · Homeschooling · liver disease · Motherhood · Parenting · pediatric cancer · Uncategorized

Hard Decisions and Trying to Emulate Normalcy

We had an “incident” at our daughter’s after school a couple of weeks ago.  Three boys surrounded her while she was coloring with chalk on the ground, circled her while saying “we’re circling you, you can’t get up, neener neener neener” (kids really are idiots… seriously… wtf?).  Her response was to throw a piece of… Continue reading Hard Decisions and Trying to Emulate Normalcy

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Mother's Day · Motherhood · Parenting · pediatric cancer · Uncategorized

Happy *Warrior* Mother’s Day

Today is Mother’s Day.  I would like to wish ALL The moms out there a wonderful HAPPY MOTHER’S DAY!   Being a mom is not easy and seems to only get harder as time goes on, so keep up the good fight. I just wanted to remind everyone of a group of moms you might not… Continue reading Happy *Warrior* Mother’s Day

Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy

Cancer · Chemo Dad · Chemo mom · children · Friends · Uncategorized

Do Not Dictate How I’m Supposed to Feel

In my last blog I said I didn’t want to be negative.  I didn’t want to make a list of things NOT to say to the parents of chronically ill children.  And I still don’t.  But someone said something to me that has brought this one thing forward.  One thing that should NEVER be said… Continue reading Do Not Dictate How I’m Supposed to Feel

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Histiocytosis · Love · Uncategorized

Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Since my daughter was diagnosed with liver failure and then cancer, I have heard it all.  I can give you a long list of things not to say to a parent with a sick or chronically ill child, but that would be exhausting and wouldn’t nearly cover it all.  These lists are all over the… Continue reading Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Cancer · Childhood Cancer · Histiocytosis · liver disease · pediatric cancer · PTSD · Uncategorized

The Nature of a Panic Attack (**language warning)

I like writing.  It calms me.  So I thought that maybe I could stop a panic attack if I just wrote during it.  Maybe just getting my thoughts out of my head.  So, I wrote this as a stream of thoughts I had while actively having a panic attack.  I planned ahead, considering I have… Continue reading The Nature of a Panic Attack (**language warning)