ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Chemomom · Childhood Cancer · Family · Histiocytosis · Motherhood · Obamacare · pediatric cancer · Uncategorized

Eight years and It Doesn’t End

Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer.  Eight years ago today, we were told that Sophie’s cancer was gone.   Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End

ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Happiness · Histiocytosis · Insurance · Love · Obamacare · pediatric cancer · Uncategorized

The ACA and Children with Cancer

It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon.   And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal.   I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer

Cancer · Chemo mom · Family · Happiness · Holidays · Home · Love · Parenting · pediatric cancer · Uncategorized

Rejoice in Your Holidays

Eight years ago today, Sophie started chemotherapy. Eight years ago today, I was terrified, watching as Dan held her in her long cherry covered jumper in the waiting room of the hospital while we waited to be taken to pre-op before the surgery to put her port in. By 2pm that day, they had completed… Continue reading Rejoice in Your Holidays

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Daughters · Family · Happiness · Histiocytosis · Love · Motherhood · Parenting · pediatric cancer · Uncategorized

The Moment You Face Your Child’s Mortality

You just read that title and thought “I know my kid is mortal.  I’ve faced this.”  And I would agree with you before my daughter was diagnosed with cancer.   But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Mother's Day · Motherhood · Parenting · pediatric cancer · Uncategorized

Happy *Warrior* Mother’s Day

Today is Mother’s Day.  I would like to wish ALL The moms out there a wonderful HAPPY MOTHER’S DAY!   Being a mom is not easy and seems to only get harder as time goes on, so keep up the good fight. I just wanted to remind everyone of a group of moms you might not… Continue reading Happy *Warrior* Mother’s Day

Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy

Cancer · Chemo Dad · Chemo mom · children · Friends · Uncategorized

Do Not Dictate How I’m Supposed to Feel

In my last blog I said I didn’t want to be negative.  I didn’t want to make a list of things NOT to say to the parents of chronically ill children.  And I still don’t.  But someone said something to me that has brought this one thing forward.  One thing that should NEVER be said… Continue reading Do Not Dictate How I’m Supposed to Feel