Cancer · Chemo Dad · Chemo mom · children · Friends · Uncategorized

Do Not Dictate How I’m Supposed to Feel

In my last blog I said I didn’t want to be negative.  I didn’t want to make a list of things NOT to say to the parents of chronically ill children.  And I still don’t.  But someone said something to me that has brought this one thing forward.  One thing that should NEVER be said… Continue reading Do Not Dictate How I’m Supposed to Feel

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Histiocytosis · Love · Uncategorized

Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Since my daughter was diagnosed with liver failure and then cancer, I have heard it all.  I can give you a long list of things not to say to a parent with a sick or chronically ill child, but that would be exhausting and wouldn’t nearly cover it all.  These lists are all over the… Continue reading Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Histiocytosis · liver disease · Motherhood · pediatric cancer · PTSD · support groups · Uncategorized

The Steps of Grief with Each Doctor Visit

When you have a child with a chronic illness, you have to go through the steps of grief emotionally to handle the disease.  But once you go through those and get through the initial emergency period,  you can get complacent during long stretches of generally good health where the “chronic” doesn’t rear its ugly head.  … Continue reading The Steps of Grief with Each Doctor Visit

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Friends · Histiocytosis · liver disease · Motherhood · Uncategorized

Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer.

Most everyone starts off on the “fighting pediatric cancer” journey with loads of friends and family.   The second you say the word “cancer,” it’s like you are suddenly the host to the world’s largest love fest.  You have friends you didn’t know you had and your family members all stand up and offer to help,… Continue reading Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Histiocytosis · liver disease · Parenting · pediatric cancer · Pediatricians · Physician · Uncategorized

Tips for Pediatric Specialists: Coping with the Tempermental Relationship You Have with Parents

You are a Pediatric Specialist.  You work in an office attached to a hospital, and you are an expert in your field.  You do amazing things.  You know the liver, heart, lungs, bone marrow, and tiny tiny cancer cells better than anyone and you know how good you are. Us parents aren’t trying to discount… Continue reading Tips for Pediatric Specialists: Coping with the Tempermental Relationship You Have with Parents

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · Motherhood · Parenting · Uncategorized

Little Hands and Living in the Now

Last night, I held our youngest daughter against my chest  and placed a flannel blanket that her Grammy made for her against her cheek and rubbed, holding the blanket wrapped around her tiny body. She instantly grabbed it with one arm and snuggled her face against it, against my chest, and promptly fell asleep. I… Continue reading Little Hands and Living in the Now