I’m not here to convert you. You don’t have to believe in God or Jesus or the Spaghetti Monster or anything. I just want to relate to you an important message I was given when I needed it. I am Catholic, though I’m more cafeteria Catholic than anything. I’m happy in my faith, and I’m… Continue reading Holiday Related Motivational Speech about Parenting (you’ve been warned, I get mushy)
I’ve never been a fan of scary movies. I don’t know why, I just don’t do them. Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer
My sweet Girls, I love you. I’m not perfect at showing you that I love you all the time and I know sometimes you wonder. I yell when you don’t listen to me. I get frustrated, I get angry. I get tired. I’m an imperfect being. But I love you so much it hurts. And… Continue reading Letter to my Daughters
Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer. Eight years ago today, we were told that Sophie’s cancer was gone. Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End
It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon. And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal. I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer
Eight years ago today, Sophie started chemotherapy. Eight years ago today, I was terrified, watching as Dan held her in her long cherry covered jumper in the waiting room of the hospital while we waited to be taken to pre-op before the surgery to put her port in. By 2pm that day, they had completed… Continue reading Rejoice in Your Holidays
You just read that title and thought “I know my kid is mortal. I’ve faced this.” And I would agree with you before my daughter was diagnosed with cancer. But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality
We had an “incident” at our daughter’s after school a couple of weeks ago. Three boys surrounded her while she was coloring with chalk on the ground, circled her while saying “we’re circling you, you can’t get up, neener neener neener” (kids really are idiots… seriously… wtf?). Her response was to throw a piece of… Continue reading Hard Decisions and Trying to Emulate Normalcy
Today is Mother’s Day. I would like to wish ALL The moms out there a wonderful HAPPY MOTHER’S DAY! Being a mom is not easy and seems to only get harder as time goes on, so keep up the good fight. I just wanted to remind everyone of a group of moms you might not… Continue reading Happy *Warrior* Mother’s Day
In my last blog I said I didn’t want to be negative. I didn’t want to make a list of things NOT to say to the parents of chronically ill children. And I still don’t. But someone said something to me that has brought this one thing forward. One thing that should NEVER be said… Continue reading Do Not Dictate How I’m Supposed to Feel
Herding Chaos 