ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Chemomom · Childhood Cancer · Family · Histiocytosis · Motherhood · Obamacare · pediatric cancer · Uncategorized

Eight years and It Doesn’t End

Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer.  Eight years ago today, we were told that Sophie’s cancer was gone.   Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End

Cancer · Chemomom · Childhood Cancer · Histiocytosis · Motherhood · pediatric cancer · PTSD

The Silent Echo of Cancer

When cancer lands in your life, it hits like an nuclear explosion.  It incinerates what used to be there.  It shatters the atmosphere.  It sucks the air to it first, so fast that the trees bend towards the explosion.  Then it shatters the world with the force of the shock wave blasting outwards, mowing down… Continue reading The Silent Echo of Cancer

Cancer · Chemo mom · Chemomom · Childhood Cancer · Parenting · pediatric cancer

What Nearly Losing My Child Taught Me About Parenting.

After nearly losing a child, I find that my approach to raising her and her siblings has completely changed.  I learned so much about how to parent from her.  This is what I’ve learned: Protect your children at ALL costs. I shouldn’t have to explain this one.  You were given your child as a gift.… Continue reading What Nearly Losing My Child Taught Me About Parenting.

Chemomom · Childhood Cancer · grief · liver disease · loss · pediatric cancer · support groups

Childhood Cancer/Pediatric Liver Disease Grief

Last day of the Childhood Cancer Awareness Month, and I find myself approaching a subject that I don’t really know how to articulate.  I want to make clear, that I haven’t experienced the loss of a child, and I will never be able to articulate that kind of pain (I hope, God, I hope), and… Continue reading Childhood Cancer/Pediatric Liver Disease Grief

Cancer · Chemo mom · Chemomom · Childhood Cancer · Histiocytosis · pediatric cancer

Childhood Cancer’s Path of Destruction and it’s Aftermath.

I got to spend today with Sophie at work because her school had this weird Fall holiday thing on a Wednesday with little to no warning.  She was AWESOME.  She drew this incredible T-shirt on a little girl in a coloring book and one of my co-workers took one look at it and told her… Continue reading Childhood Cancer’s Path of Destruction and it’s Aftermath.