Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · pediatric cancer · PTSD · Uncategorized

Life After Childhood Cancer

I’ve never been a fan of scary movies.  I don’t know why, I just don’t do them.  Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer

ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Chemomom · Childhood Cancer · Family · Histiocytosis · Motherhood · Obamacare · pediatric cancer · Uncategorized

Eight years and It Doesn’t End

Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer.  Eight years ago today, we were told that Sophie’s cancer was gone.   Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End

ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Happiness · Histiocytosis · Insurance · Love · Obamacare · pediatric cancer · Uncategorized

The ACA and Children with Cancer

It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon.   And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal.   I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer

Cancer · Chemo mom · Family · Happiness · Holidays · Home · Love · Parenting · pediatric cancer · Uncategorized

Rejoice in Your Holidays

Eight years ago today, Sophie started chemotherapy. Eight years ago today, I was terrified, watching as Dan held her in her long cherry covered jumper in the waiting room of the hospital while we waited to be taken to pre-op before the surgery to put her port in. By 2pm that day, they had completed… Continue reading Rejoice in Your Holidays

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Daughters · Family · Happiness · Histiocytosis · Love · Motherhood · Parenting · pediatric cancer · Uncategorized

The Moment You Face Your Child’s Mortality

You just read that title and thought “I know my kid is mortal.  I’ve faced this.”  And I would agree with you before my daughter was diagnosed with cancer.   But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality

Faith · Family · Friends · grief · LGBT · Love · prejudice · Shootings · The Pulse · Uncategorized

A Few Points about The Pulse Shooting

Sorry…  I started this as a FB post, but I am wordy… I have a few points to make about this shooting that have just been bouncing around in my skull for the last 24 hours.  They are not all related.  And no, not one point takes precedence over the others.  The fact that it’s… Continue reading A Few Points about The Pulse Shooting

Bathroom Debate · children · Daughters · Family · Motherhood · Restroom Debate · Uncategorized

What My Daughters Will Face and the Restroom Debate

When I was pregnant with my first child, I wanted a little girl.  Because my brain didn’t think beyond the pink bows and little girliness that having a baby girl is.  For my second child, I wanted healthy, since we’d had such a rocky road with our first.  With my third, I just wanted a… Continue reading What My Daughters Will Face and the Restroom Debate