ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Chemomom · Childhood Cancer · Family · Histiocytosis · Motherhood · Obamacare · pediatric cancer · Uncategorized

Eight years and It Doesn’t End

Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer.  Eight years ago today, we were told that Sophie’s cancer was gone.   Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End

Chemo mom · children · Daughters · Motherhood · pediatric cancer · PTSD · Uncategorized

Flashbacks are a THING.

For those who don’t know, something like 20-30% of parents with children that suffer from chronic illnesses or severe diseases suffer with PTSD.   PTSD can surface in many different ways, including unexplained frustration, anger, sadness, anxiety, deep depression, issues with going into public, problems with noise, weight gain or loss, and flashbacks.   And… Continue reading Flashbacks are a THING.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Daughters · Family · Happiness · Histiocytosis · Love · Motherhood · Parenting · pediatric cancer · Uncategorized

The Moment You Face Your Child’s Mortality

You just read that title and thought “I know my kid is mortal.  I’ve faced this.”  And I would agree with you before my daughter was diagnosed with cancer.   But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality

Bathroom Debate · children · Daughters · Family · Motherhood · Restroom Debate · Uncategorized

What My Daughters Will Face and the Restroom Debate

When I was pregnant with my first child, I wanted a little girl.  Because my brain didn’t think beyond the pink bows and little girliness that having a baby girl is.  For my second child, I wanted healthy, since we’d had such a rocky road with our first.  With my third, I just wanted a… Continue reading What My Daughters Will Face and the Restroom Debate

Chemo mom · Childhood Cancer · children · Histiocytosis · Homeschooling · liver disease · Motherhood · Parenting · pediatric cancer · Uncategorized

Hard Decisions and Trying to Emulate Normalcy

We had an “incident” at our daughter’s after school a couple of weeks ago.  Three boys surrounded her while she was coloring with chalk on the ground, circled her while saying “we’re circling you, you can’t get up, neener neener neener” (kids really are idiots… seriously… wtf?).  Her response was to throw a piece of… Continue reading Hard Decisions and Trying to Emulate Normalcy

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Mother's Day · Motherhood · Parenting · pediatric cancer · Uncategorized

Happy *Warrior* Mother’s Day

Today is Mother’s Day.  I would like to wish ALL The moms out there a wonderful HAPPY MOTHER’S DAY!   Being a mom is not easy and seems to only get harder as time goes on, so keep up the good fight. I just wanted to remind everyone of a group of moms you might not… Continue reading Happy *Warrior* Mother’s Day