Today is Mother’s Day. I would like to wish ALL The moms out there a wonderful HAPPY MOTHER’S DAY! Being a mom is not easy and seems to only get harder as time goes on, so keep up the good fight. I just wanted to remind everyone of a group of moms you might not… Continue reading Happy *Warrior* Mother’s Day
It’s mother’s day, which is usually a day for celebrating your mother, and I do celebrate my mom. But I spent this week watching my little babies celebrate me with hugs and little hand made gifts and things and while I melted into my ballet slippers, I kept thinking “but you are the reason I… Continue reading Being Mom
When you have a child with a chronic illness, you have to go through the steps of grief emotionally to handle the disease. But once you go through those and get through the initial emergency period, you can get complacent during long stretches of generally good health where the “chronic” doesn’t rear its ugly head. … Continue reading The Steps of Grief with Each Doctor Visit
Most everyone starts off on the “fighting pediatric cancer” journey with loads of friends and family. The second you say the word “cancer,” it’s like you are suddenly the host to the world’s largest love fest. You have friends you didn’t know you had and your family members all stand up and offer to help,… Continue reading Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer..
Last night, I held our youngest daughter against my chest and placed a flannel blanket that her Grammy made for her against her cheek and rubbed, holding the blanket wrapped around her tiny body. She instantly grabbed it with one arm and snuggled her face against it, against my chest, and promptly fell asleep. I… Continue reading Little Hands and Living in the Now
My husband is a man of many colors, a renaissance man with many cloaks and many talents. He is humble and kind and doesn’t think much of himself, which is ridiculous, but I can hardly change him or how he sees himself after 14 years. Much like myself, his soul was marred by our daughter’s… Continue reading Homage to Chemo Dads
I am the mother of a medically fragile child. I have been her mother for 8 years, and for nearly all of those 8 years she has been very sick, recovering, or dealing with the permanent effects of her illness. She was born with Resistant Multisystem Langerhans Cell Histiocytosis, which is a fancy way for… Continue reading Dear Normal Parents, A Letter From a Chemo Mom