Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy

children · Family · husband · Love · marriage · Parenting · Silly Kids · Uncategorized

What Every Person Who Wants a Kid Should Be Told.

I have three kids.  I love the hell out of each and every one of them and wouldn’t trade a minute with them.  But I had NO idea what I was getting into.  When you are young and in love you think “I want a child that looks like him.” or “Maybe our children will… Continue reading What Every Person Who Wants a Kid Should Be Told.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Histiocytosis · liver disease · Parenting · pediatric cancer · Pediatricians · Physician · Uncategorized

Tips for Pediatric Specialists: Coping with the Tempermental Relationship You Have with Parents

You are a Pediatric Specialist.  You work in an office attached to a hospital, and you are an expert in your field.  You do amazing things.  You know the liver, heart, lungs, bone marrow, and tiny tiny cancer cells better than anyone and you know how good you are. Us parents aren’t trying to discount… Continue reading Tips for Pediatric Specialists: Coping with the Tempermental Relationship You Have with Parents

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · Motherhood · Parenting · Uncategorized

Little Hands and Living in the Now

Last night, I held our youngest daughter against my chest  and placed a flannel blanket that her Grammy made for her against her cheek and rubbed, holding the blanket wrapped around her tiny body. She instantly grabbed it with one arm and snuggled her face against it, against my chest, and promptly fell asleep. I… Continue reading Little Hands and Living in the Now

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · Husband · liver disease · Love · marriage · Motherhood · Parenting · pediatric cancer · Uncategorized

Homage to Chemo Dads

My husband is a man of many colors, a renaissance man with many cloaks and many talents.  He is humble and kind and doesn’t think much of himself, which is ridiculous, but I can hardly change him or how he sees himself after 14 years.  Much like myself, his soul was marred by our daughter’s… Continue reading Homage to Chemo Dads