Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · pediatric cancer · PTSD · Uncategorized

Life After Childhood Cancer

I’ve never been a fan of scary movies.  I don’t know why, I just don’t do them.  Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer

Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Histiocytosis · liver disease · Motherhood · pediatric cancer · PTSD · support groups · Uncategorized

The Steps of Grief with Each Doctor Visit

When you have a child with a chronic illness, you have to go through the steps of grief emotionally to handle the disease.  But once you go through those and get through the initial emergency period,  you can get complacent during long stretches of generally good health where the “chronic” doesn’t rear its ugly head.  … Continue reading The Steps of Grief with Each Doctor Visit

Cancer · Chemo mom · Childhood Cancer · Histiocytosis · pediatric cancer · PTSD · Survivor · Uncategorized

Please don’t think me weak.

I find myself thinking those words more often than not in the last few weeks. I’ve always been the bad@$$ in the herd.  The black sheep with the bandana, playing the metal music and not bending to the judgement of others. I didn’t cry for anything, ever.  I didn’t cry when I moved away from… Continue reading Please don’t think me weak.

Cancer · Chemo mom · Childhood Cancer · Family · liver disease · Motherhood · Parenting · pediatric cancer · PTSD · Uncategorized

The Eggshell Child

When I was in law school, I remember being in torts class and learning about “the eggshell plaintiff.”  A plaintiff is a person who sues another person in court for injuries.  The Eggshell plaintiff is the person who is injured by something you did, but their injuries are far worse than they would be in… Continue reading The Eggshell Child

Chemo mom · Childhood Cancer · children · Comedy · Family · Histiocytosis · Parenting · pediatric cancer · PTSD · Uncategorized

Put the Panic Button Down! Back Away from the Panic Button!

When you have a child you think “I’m going to be cool about this.”  “I’m going to not panic over a hangnail.”  “I’m going to understand how to treat a simple cold and get over it and move on.” Total joke. That whole adage about now you freak out over everything for the first child… Continue reading Put the Panic Button Down! Back Away from the Panic Button!

Cancer · Chemo mom · Childhood Cancer · Family · Histiocytosis · liver disease · Motherhood · Parenting · pediatric cancer · PTSD · Uncategorized

Breakdown of a PTSD Attack for this Chemo Mom

Let me preface this post with this:  Vivi is fine.  My gut says that she’s just teething and in a growth spurt cause she’s eating so much and losing tummy weight and walking now. She has no real symptoms of anything more than normal baby growth stuff. I had a bad PTSD day yesterday that… Continue reading Breakdown of a PTSD Attack for this Chemo Mom