Cancer · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · Parenting · pediatric cancer · Remission · Uncategorized

Don’t Say “She Looks Fine” to the Parent of a Sick Child.

Sophia Tempee was born with Langerhans Cell Histiocytosis ravaging her organs.  She was 6 lbs 8 ounces, bouncing, beautiful, pink with no hair and HUGE dark eyes and no one had a clue, but she was sick. From birth, she puked nearly everything up all the time. I doubled up the formula in her bottles… Continue reading Don’t Say “She Looks Fine” to the Parent of a Sick Child.

Cancer · Chemo mom · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · Remission · Survivor · Uncategorized

What Remission Looks Like

What if someone you loved had cancer?  Would you think the word “remission” would be the end of the terror?  That your fears would be gone, right?  That it’s okay now, and that your baby or your husband or wife or mom or dad or sibling is going to be fine now, and that you… Continue reading What Remission Looks Like