Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy

Cancer · Chemo Dad · Chemo mom · children · Friends · Uncategorized

Do Not Dictate How I’m Supposed to Feel

In my last blog I said I didn’t want to be negative.  I didn’t want to make a list of things NOT to say to the parents of chronically ill children.  And I still don’t.  But someone said something to me that has brought this one thing forward.  One thing that should NEVER be said… Continue reading Do Not Dictate How I’m Supposed to Feel

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Histiocytosis · liver disease · Motherhood · pediatric cancer · PTSD · support groups · Uncategorized

The Steps of Grief with Each Doctor Visit

When you have a child with a chronic illness, you have to go through the steps of grief emotionally to handle the disease.  But once you go through those and get through the initial emergency period,  you can get complacent during long stretches of generally good health where the “chronic” doesn’t rear its ugly head.  … Continue reading The Steps of Grief with Each Doctor Visit

children · Family · husband · Love · marriage · Parenting · Silly Kids · Uncategorized

What Every Person Who Wants a Kid Should Be Told.

I have three kids.  I love the hell out of each and every one of them and wouldn’t trade a minute with them.  But I had NO idea what I was getting into.  When you are young and in love you think “I want a child that looks like him.” or “Maybe our children will… Continue reading What Every Person Who Wants a Kid Should Be Told.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Friends · Histiocytosis · liver disease · Motherhood · Uncategorized

Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer.

Most everyone starts off on the “fighting pediatric cancer” journey with loads of friends and family.   The second you say the word “cancer,” it’s like you are suddenly the host to the world’s largest love fest.  You have friends you didn’t know you had and your family members all stand up and offer to help,… Continue reading Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer.

Cancer · Chemo mom · Childhood Cancer · children · Faith · Histiocytosis · Religion · Uncategorized

My Faith and My Daughter’s Cancer

Disclaimer:   This is not a preaching moment for me to tell you that you have to or even that you should believe in a God or Goddess or Gods or have any faith at all.  I believe in the freedom of religion, whatever that religion might be, and that includes the freedom to NOT have… Continue reading My Faith and My Daughter’s Cancer