ABC’s new show “The Good Doctor” did something amazing this week. They did a show that featured Langerhans Cell Histiocytosis. The fact that anyone outside of a hospital knows the name of this rare cancer that nearly killed my baby is amazing. I am thrilled the name got out there. But rather than bringing awareness… Continue reading “The Good Doctor” and the Bad Script
I’ve never been a fan of scary movies. I don’t know why, I just don’t do them. Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer
It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon. And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal. I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer
For those who don’t know, something like 20-30% of parents with children that suffer from chronic illnesses or severe diseases suffer with PTSD. PTSD can surface in many different ways, including unexplained frustration, anger, sadness, anxiety, deep depression, issues with going into public, problems with noise, weight gain or loss, and flashbacks. And… Continue reading Flashbacks are a THING.
Sorry… I started this as a FB post, but I am wordy… I have a few points to make about this shooting that have just been bouncing around in my skull for the last 24 hours. They are not all related. And no, not one point takes precedence over the others. The fact that it’s… Continue reading A Few Points about The Pulse Shooting
Most everyone starts off on the “fighting pediatric cancer” journey with loads of friends and family. The second you say the word “cancer,” it’s like you are suddenly the host to the world’s largest love fest. You have friends you didn’t know you had and your family members all stand up and offer to help,… Continue reading Culling the Herd: How Relationships with Friends and Family Change When Your Child has Cancer.
My grandmother died somewhere around 14 years ago. I realized that this evening while I was reading something regarding the Lilo and Stitch movie. Why do these two things connect for me? When I was 8, I think, my grandparents moved to Honolulu. And I was blessed with being able to visit them a number… Continue reading Dear Grandma