ACA · Affordable Care Act · Cancer · Chemo Dad · Chemo mom · Chemomom · Childhood Cancer · Family · Histiocytosis · Motherhood · Obamacare · pediatric cancer · Uncategorized

Eight years and It Doesn’t End

Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer.  Eight years ago today, we were told that Sophie’s cancer was gone.   Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End

Chemo mom · children · Daughters · Motherhood · pediatric cancer · PTSD · Uncategorized

Flashbacks are a THING.

For those who don’t know, something like 20-30% of parents with children that suffer from chronic illnesses or severe diseases suffer with PTSD.   PTSD can surface in many different ways, including unexplained frustration, anger, sadness, anxiety, deep depression, issues with going into public, problems with noise, weight gain or loss, and flashbacks.   And… Continue reading Flashbacks are a THING.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Daughters · Family · Happiness · Histiocytosis · Love · Motherhood · Parenting · pediatric cancer · Uncategorized

The Moment You Face Your Child’s Mortality

You just read that title and thought “I know my kid is mortal.  I’ve faced this.”  And I would agree with you before my daughter was diagnosed with cancer.   But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality

Cancer · Childhood Cancer · children · Histiocytosis · liver disease · Parenting · pediatric cancer · PTSD · Uncategorized

Feeling Squishy

3:30 a.m. Tuesday morning. I have Sophie tucked into her booster seat behind me.  Butterfly pillow between her head and her brother’s car seat as she leans into it.   Sugar-skull covered fluffy blanket over her.  She’s still in her Lego movie pajamas and falls right back to sleep once I get the truck moving. I… Continue reading Feeling Squishy