Cancer · Chemo Dad · Chemo mom · Childhood Cancer · Family · Histiocytosis · Love · Uncategorized

Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Since my daughter was diagnosed with liver failure and then cancer, I have heard it all.  I can give you a long list of things not to say to a parent with a sick or chronically ill child, but that would be exhausting and wouldn’t nearly cover it all.  These lists are all over the… Continue reading Five Things the Parents of a Child with a Chronic Illness NEED TO HEAR

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Histiocytosis · liver disease · Motherhood · pediatric cancer · PTSD · support groups · Uncategorized

The Steps of Grief with Each Doctor Visit

When you have a child with a chronic illness, you have to go through the steps of grief emotionally to handle the disease.  But once you go through those and get through the initial emergency period,  you can get complacent during long stretches of generally good health where the “chronic” doesn’t rear its ugly head.  … Continue reading The Steps of Grief with Each Doctor Visit

children · Family · husband · Love · marriage · Parenting · Silly Kids · Uncategorized

What Every Person Who Wants a Kid Should Be Told.

I have three kids.  I love the hell out of each and every one of them and wouldn’t trade a minute with them.  But I had NO idea what I was getting into.  When you are young and in love you think “I want a child that looks like him.” or “Maybe our children will… Continue reading What Every Person Who Wants a Kid Should Be Told.

Cancer · Chemo mom · Childhood Cancer · Histiocytosis · pediatric cancer · PTSD · Survivor · Uncategorized

Please don’t think me weak.

I find myself thinking those words more often than not in the last few weeks. I’ve always been the bad@$$ in the herd.  The black sheep with the bandana, playing the metal music and not bending to the judgement of others. I didn’t cry for anything, ever.  I didn’t cry when I moved away from… Continue reading Please don’t think me weak.

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · liver disease · Motherhood · Parenting · Uncategorized

Little Hands and Living in the Now

Last night, I held our youngest daughter against my chest  and placed a flannel blanket that her Grammy made for her against her cheek and rubbed, holding the blanket wrapped around her tiny body. She instantly grabbed it with one arm and snuggled her face against it, against my chest, and promptly fell asleep. I… Continue reading Little Hands and Living in the Now

Cancer · Chemo Dad · Chemo mom · Childhood Cancer · children · Family · Histiocytosis · Husband · liver disease · Love · marriage · Motherhood · Parenting · pediatric cancer · Uncategorized

Homage to Chemo Dads

My husband is a man of many colors, a renaissance man with many cloaks and many talents.  He is humble and kind and doesn’t think much of himself, which is ridiculous, but I can hardly change him or how he sees himself after 14 years.  Much like myself, his soul was marred by our daughter’s… Continue reading Homage to Chemo Dads