ABC’s new show “The Good Doctor” did something amazing this week. They did a show that featured Langerhans Cell Histiocytosis. The fact that anyone outside of a hospital knows the name of this rare cancer that nearly killed my baby is amazing. I am thrilled the name got out there. But rather than bringing awareness… Continue reading “The Good Doctor” and the Bad Script
I’ve never been a fan of scary movies. I don’t know why, I just don’t do them. Don’t get me wrong, a good book series about zombies or the apocalypse or ghost hauntings, and I’m there with my kindle, a 32 oz of cold coffee, and a growl at the husband for interrupting my book… Continue reading Life After Childhood Cancer
Today is the 8th Remission Anniversary for Sophie defeating Langerhans Cell Histiocytosis, a rare form of cancer. Eight years ago today, we were told that Sophie’s cancer was gone. Eight years ago today, we had hope that Sophie would grow up ,she’d grow old, she’d have a wedding and a job and children and a… Continue reading Eight years and It Doesn’t End
It looks like the Affordable Care Act (ACA), aka Obamacare, may be repealed soon. And I wanted to point something out to everyone that already has health insurance through a reliable source, and thus are not likely to be immediately effected by the repeal. I’m not going to talk to you about preexisting conditions, though… Continue reading The ACA and Children with Cancer
For those who don’t know, something like 20-30% of parents with children that suffer from chronic illnesses or severe diseases suffer with PTSD. PTSD can surface in many different ways, including unexplained frustration, anger, sadness, anxiety, deep depression, issues with going into public, problems with noise, weight gain or loss, and flashbacks. And… Continue reading Flashbacks are a THING.
Eight years ago today, Sophie started chemotherapy. Eight years ago today, I was terrified, watching as Dan held her in her long cherry covered jumper in the waiting room of the hospital while we waited to be taken to pre-op before the surgery to put her port in. By 2pm that day, they had completed… Continue reading Rejoice in Your Holidays
You just read that title and thought “I know my kid is mortal. I’ve faced this.” And I would agree with you before my daughter was diagnosed with cancer. But I didn’t realize what my child’s mortality really was until it slapped me in the face. I knew, when I got pregnant, that I had… Continue reading The Moment You Face Your Child’s Mortality